At Camp, Gavin Thrives in His Own Skin

Gavin was born a Micro-premie at 24 weeks and 4 days, weighing only 1 pound 6 ounces. He spent his first 4 ½ months in the NICU, on a ventilator for 2 ½ of those months. He was diagnosed with a rare genetic disorder, Baraitser-Winter syndrome ACTG 1, which affects his heart, kidneys, eyes, ears, […]