Lennox is four years old. He was diagnosed with a rare genetic condition that doesn’t have a specific name. “I knew before he was born that he would have at least three defects, but he was born with seven, including Vertical Talus, constricted fingers, a ventricular septal defect (VSD)/patent foramen ovale (PFO), cleft lip, cleft palate, and developmental issues,” Kelsy, Lennox’s mom said.
Lennox was also diagnosed with autism at age 3. He has had 13 surgeries, 5 sets of permanent ear tubes, and will need more surgeries throughout his life. He also has an immune disease called Eosinophilic esophagitis (EOE) and is allergic to dairy and gluten.
Lennox received speech and OT/PT services through Rainbows Infant Toddler Services and now attends Early Care and Education at Kids’ Point. “I plan to enroll him in additional therapy,” said Kelsy. Lennox worked with Teddi, an early interventionist “who was amazing and became a forever person in our lives.”
“Everyone at Rainbows Kids’ Point has been incredible with Lennox. We’ve become like family,” said Kelsy. “I appreciate everyone at Rainbows who helps with Lennox’s Ankle Foot Orthosis (AFOs), G-tube feeds, and daily medications.”
“I don’t remember who recommended Rainbows, but Lennox has been going to Rainbows since he was around 6 months to a year old,” Kelsy said. “He’s been going there for at least two years.” The changes in Lennox have been astronomical. As an only child, he didn’t have peers to interact with until he made friends at Rainbows.
He has come so far because of Rainbows. It gives him structure, routine, friendships, love, grace, fun, and excitement. “One of my fondest memories of Lennox is when he took his first steps,” said Early Childhood Special Education Teacher, Autumn Hutchinson. “Watching him go from needing his gait trainer just to stand, to eventually running, has been incredible.”
The peer interactions have helped Lennox blossom, especially with his feedings and trying new foods. “Rainbows has also impacted me positively by allowing me time to work and relax, knowing my child is safe and in good hands,” Kelsy said. “Rainbows has significantly impacted our lives by providing Lennox with social interaction, developmental support, and a sense of belonging. It has also given me peace of mind and the support I need as a single mother.”
Lennox has been through more than most adults, especially medically. “I want people to see how special he is,” Kelsy said. “He’s sensitive, strong-minded, and fearless. He has medical PTSD due to his numerous surgeries and medical procedures. Lennox was late learning some milestones but quickly caught up. I am so proud of my child.”
“Lennox is my only child,” said Kelsy. The family has three cats: Max, Steven, and Thomas. “We love to play with miniatures, cars, dinosaurs, art, airplanes, and going to museums,” Kelsy said. She wants everyone to know that “If you have a child, special needs or not, you will see positive changes if you send them to Rainbows. They will care for and love your child as if they were their own.”
By Megan Bailey, Volunteer writer
