One of the most rewarding things I have encountered as An AmeriCorps VISTA serving at Rainbows, is hearing stories of the impact Rainbows has on the community. It is amazing to me just how many stories there are of children whose lives have been touched by this organization. Thank you to the families who have allowed me to write their story and experience the difference Rainbows has made. Here’s a new one you won’t want to miss!
Jackson was born with a genetic syndrome called 22q11.2 Deletion Syndrome. At 2 years old when his family moved to Kansas, Jackson began receiving Rainbows’ services. “Rainbows was a great resource for us,” said Kendall, Jackson’s mother. “Rainbows was able to provide a comprehensive team of therapists to evaluate and treat Jackson.” Due to the complications with his condition, Jackson had to have a feeding tube in order to receive proper nutrition. Jackson received speech and occupational therapy through Rainbows until he was 3 years old. Through these therapies, his speech improved and he reached independence with his eating. “Having a child with special needs is very scary for families, we felt overwhelmed by the enormity and complexity of Jackson’s needs,” Kendall said. “Rainbows gave us hope that Jackson, given the right intervention, would grow and learn and meet his potential. Each therapist emphasized Jackson’s strengths while acknowledging our concerns.”
Jackson is now fifteen years old and a freshman in high school. He is a big sports fan and loves to watch basketball, baseball, and football. This Spring, Jackson plans to play baseball for his school. He is very good with kids and loves to spend time with his younger cousins. “We are very grateful to Rainbows for providing us with the support we needed during Jackson’s young life,” Kendall said. “We are so proud of Jackson and grateful for how far he has come.”
Dan, Jackson’s father is a member of Rainbows’ Board of Directors. “I never walk away from Rainbows or a Rainbows’ event without a good feeling,” Dan Said. Dan and Kendall are starting a teen group for other individuals with 22q11.2 Deletion Syndrome. The purpose of the group is to have fun. Activities like movies, bowling, or pizza will give these teens the opportunity to get together with kids who have similar challenges. For more information about the group contact 316.204.9045 or kendalldrake@yahoo.com Click here to read about more Rainbows’ children and families.
